Evan has been great spirits and is eating rather well but with unusual combinations. Those of you who follow on Facebook know that on Tuesday he had an ice cream smoothie with pineapple and a few other goodies tossed in, followed by a small bag of cheetos and then for the last snack of the day he had a 3-4 oz portion of salmon with honey mustard sauce. I thought for sure that combination was going to come back up but it did not! He went to school for an hour on Tuesday but did not go on Wednesday because he was tired and wanted to sleep. He is pale and this the result of the latest chemo which destroys most of his marrow and subsequent red/white cells. This is the reason that the Doctor feels there will be a need for a transfusion. Last night he asked me fish again which I didn't have but offered him some of the grilled steak I was making for the adults for dinner which he readily agreed to. He had enough energy to want to help me grill the steak and went out onto the lanai to assist me in doing so. He was rambling on in his typical Alvin and chipmunks' voice talking about the stars being bright and clouds in the sky; talking like a typical little boy that didn't have a care in the world or cancer in his body. This is an amazing little person taking on the day with no complaints; he even is accepting the neupogen injections without complaint and they hurt!
10:22 AM Update: blood work results are in and he does not need a transfusion. Counts are low but not enough to warrant the need to do so. He is preparing to go home until next visit.
2:30 PM Update: We have an appointment with the Bone Doctors on Thursday 02/13/2014 At 12:30 in Tampa. Thoughts and prayers appreciated for this important meeting!
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